Skip to main content

Advocacy


03 April 2024

Another Great FARE Courage at Congress - 2024

Early in March, FARE hosted their annual Courage at Congress in Washington DC. Over 200 Advocates from around the country gathered to learn about federally funded research updates and to prepare the group to meet with their Congressional Representatives and Senators to request their sponsorship of a broad range of legislation that will directly benefit those living with life threatening allergies. The research updates by Dr. Alkis Togias, of the National Institute of Allergy and Infectious Disease (NIAID) and the Consortium of Food Allergy Research (CoFAR) highlighted progress made in stud...
16 February 2024

Legislation Introduced in Florida to Require Adoption of Anaphylaxis Policies in Public Schools

We’re all safer with community based epinephrine. Anaphylaxis can take any of us by surprise, especially those with undiagnosed allergies. Safe, community based epinephrine in public entities of all types has to be supported by legislation. Dave Bloom at Snack Safely reports on important legislation being sponsored by legislators in Florida that does exactly that in schools. As per the Florida Health Department, schools and other entities in the state are already authorized to stock epinephrine and train staff on when & how to administer it. Building on existing law, the proposed legis...
10 January 2024

Tom Abinanti on the Importance of "The Necessary Noise"

In this video, Former New York State Assembly Member Tom Abinanti explains the importance of advocates "Making the Noise Necessary" to educate legislators to problems and solutions required to give those in our community managing life threatening allergies confidence that we all have their back with knowledge and epinephrine to help them in an emergency.
09 January 2024

Finally! Teacher Training Passes in New York State!

After more than a decade of tireless advocacy on the part of many advocates in New York, lead by Stacey Saiontz, the 200,000 food allergic children in New York State can now have confidence that their schools will now be required to have information on hand, that their teachers can access to help keep them safe in an anaphylactic emergency. The required information includes when and how to administer epinephrine to keep their students safe. Saiontz, along with her son, Jared worked with many New York State legislators and committee chairs to get this legislation passed. Special thanks go t...
17 September 2023

College Campuses Can be Hazardous for Students

By Katie Camero August 31, 2023 The number of young people with food allergies has been surging in the past few decades. This fall, many of them are heading to college. Living with a food allergy at home is challenging under the best of circumstances. But college students say navigating food allergies on campus is particularly fraught. Nearly a dozen current and recent college students with food allergies shared stories of encountering allergens in campus dining halls, during dorm-life shenanigans and at off-campus events. Alyssa Bauder, 25, a doctoral candidate in Chicago with a...
16 September 2023

Siren School social media circus, over peanuts

By Becky Strabel Sept. 8th, 2023 After the School District of Siren posted on Facebook that the district would be a nut-free zone, comments for and against filled their feed. The post came just days before the district would welcome back students and after some teachers had already bought classroom snacks. Public comments at the Siren Board of Education meeting on Monday, Aug. 28, were similar to those online. Sarah Brewster questioned the board’s decision to ban the entire district of products with peanuts and tree nuts, including products made in a factory containing those ite...